Muscular Dystrophy Patients United (MDP United) was founded by Dominick Evans who has Spinal Muscular Atrophy. As a former ambassador for another MD organization and a patient dealing with every day disability issues, Dominick understands exactly what individuals with Muscular Dystrophy go through on a daily basis. The other organizations, while they are able to help in their own way, do not provide all of the services those with Muscular Dystrophy need to live healthy, happy, and productive lives.
The main goal of MDP United is to provide support, services, education, and information about Muscular Dystrophy and all of the diseases that fall within its boundaries that are not available anywhere else. In the United States, resources are limited, and yet equipment, specialty medical services, and other necessary programs simply are not available. Through the MDP fundraisers, awareness of these diseases can and will be established and money can be made for services.
Every day, people who need wheelchairs go without them. They go without much needed equipment like Hoyer lifts, van lifts, hospital beds, and wheelchair ramps. They may fall through a loophole and be denied the funding they need by government agencies. That is where MDP United one day hopes to step in. If a medical need has been established for the equipment, other funding sources have been exhausted, and the patient has one of the 40+ neuromuscular diseases covered under the umbrella term, Muscular Dystrophy, then he or she will qualify for MDP United services.
The goal of MDP United is to bring back the dignity, respect, and hope for those that are living their lives with a neuromuscular disease. It is our hope that we will soon have the funds to serve the entire United States so that the goal of MDP United and our wonderful resources can be spread throughout the nation.
Check out the MDP United Website
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My heart nearly broke today when I received information on one of our children's Christmas wishes. At ten, he had no Christmas wish because he knows times are rough for his family. However, his mom said he loves board games. How can a child not have a Christmas wish? That makes me sad and I plan to make sure he gets board games and a good Christmas this year.
11/29/07 02:11:05 pm
I posted information on one of our families that need assistance this year at http://www.mdp-united.org. Please consider helping out this family if you can. I have another family who has applied for assistance as well, so any help is greatly appreciated!
11/28/07 12:11:16 am
We're doing a Christmas Adoption Program for Families with Kids that have MD. If you would like to volunteer to help provide Christmas for a family this year, please let me know!
11/27/07 02:11:54 pm